My Appointment

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My Appointment

Postby EmptyCup » Fri Apr 06, 2018 1:24 pm

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Last edited by EmptyCup on Mon Jun 10, 2019 3:05 am, edited 2 times in total.
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Re: My Appointment

Postby PoetFire » Sun Apr 08, 2018 6:10 pm

Thanks for sharing. Sounded not a pleasant visit.
I think to consultants of serious disorders, we might be the trivial one.

Often the urine test is a collection of 24 hours of urine (then a sample taken from it).
Sounds like the Dr just went for a 'spot check'.

Nowadays I would suggest doing the DNA first, but NHS dont allow the DNA test unless you 'fail' the urine test.
The urine test now seems harder to 'fail', going from 33% fail in the old test, to 16% now.
Personally I think this means more 'false negatives' but just my opinion.
Sadly not much we can do as only one test supplier.
Be interesting to know how you got on.
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Re: My Appointment

Postby EmptyCup » Mon Apr 09, 2018 7:03 pm

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Last edited by EmptyCup on Mon Jun 10, 2019 2:58 am, edited 1 time in total.
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Re: My Appointment

Postby EmptyCup » Wed Apr 11, 2018 10:56 am

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Last edited by EmptyCup on Mon Jun 10, 2019 2:58 am, edited 1 time in total.
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Re: My Appointment

Postby PoetFire » Wed Apr 11, 2018 2:10 pm

I wouldn't worry too much. The Dr will have put on the sample it was a 'spot test'.
You had a high choline load the night before.
24 hour is a 'gold standard' I suppose.
The idea you take a sample from it and this represents 24 hours.
It's not very practical, as 24 hours of urine is surprisingly a lot.
I used a 2 litre bottle and ended up doing just 12 hours.

tbh I reckon you will be 'negative'.
The new test is just too difficult to fail.
TMAU2 doesn't seem to exist anymore.

I guess you could use 24 hour as an excuse for a new test.
You could ask your GP, he can sanction the test.
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Re: My Appointment

Postby EmptyCup » Wed Apr 11, 2018 6:41 pm

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Last edited by EmptyCup on Mon Jun 10, 2019 2:59 am, edited 1 time in total.
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Re: My Appointment

Postby EmptyCup » Thu May 10, 2018 12:58 pm

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Last edited by EmptyCup on Mon Jun 10, 2019 3:00 am, edited 1 time in total.
EmptyCup
 
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Re: My Appointment

Postby PoetFire » Thu May 10, 2018 3:38 pm

I think this will be the new typical.

One option might be to contact your MP to show them how useless the NHS is in treating metabolic body odor.

Its a double whammy now, with the test now backing up the consultants attitude, both getting TMAU off the books.
I would guess we are the biggest 'rare disease' group on their books and a trivial nuisance.

it's good to get a copy of the results.
I guess a 'transparent' dept would do that automatically.
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Re: My Appointment

Postby EmptyCup » Thu May 10, 2018 7:20 pm

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Last edited by EmptyCup on Mon Jun 10, 2019 3:00 am, edited 1 time in total.
EmptyCup
 
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Re: My Appointment

Postby PoetFire » Thu May 10, 2018 8:23 pm

you answered them well.
I think dr Lachmann allows 3 tests.

metabolic bo/halitosis is in a dire way with the system, and in the uk its now got worse.
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