My Appointment

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Re: My Appointment

Postby PoetFire » Thu May 10, 2018 8:31 pm

another possibility is to do the 23andme dna test to see if you have the common fmo3 variants.
but again the system will likely not accept any variants as proof
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Re: My Appointment

Postby EmptyCup » Sun Aug 19, 2018 4:58 pm

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Re: My Appointment

Postby PoetFire » Tue Aug 21, 2018 12:01 am

re 24 hour :
Im not sure but maybe the concentration would be different from a spot.

I think Nigel used to do the 24 hour test.
Maybe it still is and its the GP saying spot test.
Maybe contact Sheffield to ask .... or even do 24 and write 24 hour on the sample.

I see now, the GP expects you to sample at the surgery ?
I couldn't do that. Just can't 'supply on demand'.
My GP at least let me take the kit home.
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Re: My Appointment

Postby EmptyCup » Tue Aug 21, 2018 6:55 pm

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Re: My Appointment

Postby PoetFire » Tue Aug 21, 2018 7:41 pm

I would try for the 24 hours and write it on the tube.
but I still expect 'transients' to now get a negative for sure.

I would contact Sheff to see what their instructions are.
To see if they changed.

GP told me a spot test years ago, but thats not what Nigel suggested.
That said, he said he took spot tests anyway, but recommended 24 hour.
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Re: My Appointment

Postby EmptyCup » Tue Aug 21, 2018 8:21 pm

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Re: My Appointment

Postby EmptyCup » Thu Aug 23, 2018 2:44 pm

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Re: My Appointment

Postby PoetFire » Fri Aug 24, 2018 8:36 am

Thanks for the update. Very useful.
Now we know, 24 hour is still their recommend.
Nigel also said 12 was fine (or at least, over a decent period of time), but 24 was the suggestion.

Really tho, they should make sure the GPs are clear on this themselves.
GPs know nothing about it.

I'm guessing you may have spoke to Joanne Croft, who was one of the 2 who gave the lecture in London to the TMAU group around March.

Yes I'd get the results if you can, just for the record.
In the end the positive/negative is just an opinion.

Great work. good to get 24 hour confirmed.
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Re: My Appointment

Postby EmptyCup » Tue Oct 30, 2018 6:14 pm

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Re: My Appointment

Postby PoetFire » Thu Nov 01, 2018 3:04 pm

Thanks for the update

Do you think this consultant is more 'community friendly' than Dr Lachmann ?

I think the chances of being negative are very high.
New test just doesn't seem to pick up the 'outliers / transients ' anymore.
In Holland the lab does the DNA test first, and regards the urine test as 'unreliable' (I agree).

If you could get the DNA test done somehow, I would guess you carry 2 or more of the common variants or some other 'variant combo'.
They are taught this is still not enough to make a person 'potentially smelly', but I think they are mistaken.

you could maybe mention to the consultant the recent paper by Dr Wevers et al about new metabolic malodor suspect metabolites .... DIMETHYLSULFIDE and METHANETHIOL .... from a paper in 2017
https://www.ru.nl/english/news-agenda/n ... ad-breath/
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