conference needed


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conference needed

Postby malory » Thu Sep 06, 2018 3:35 pm

Apparently, there was a TMAU conference in 2002. ... 20315.html

Another one is surely well overdue and, in light of developments regarding different volatiles causing odour, then it is definitely about time another conference was held.

Could we all email the following contacts requesting that a conference be held to discuss TMAU and metabolic odour disorders. We could use a different slant for each department as they focus on different things (mental health/genetics/digestive) and try to persuade that particular department of the importance of holding a conference. It would raise awareness if nothing else. ... ntact-gard
Contact GARD | Genetic and Rare Diseases Information ...
You can contact a GARD Information Specialist if you have a question about a rare or genetic disease. Information Specialists cannot make a diagnosis or give medical advice.
Kaufmann, Petra (NIH/NCATS) [E]

National Human Genome Research Institute (NHGRI):
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National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK):

National Institute of Mental Health (NIMH):

National Institute on Minority Health and Health Disparities (NIMHD):

basic sample email:
It has been 16 years since a conference was held to discuss the metabolic odour disorder known as Trimethylaminuria. Given the highly increased number of sufferers of metabolic odour disorder such as Trimethylaminuria (TMAU), we feel that a conference to discuss this subject is long overdue.

Could you please let me know if this would be possible in the near future?
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